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Special Needs Self Settled Trusts

The Three Flavors of Special Needs Trusts: #3 Self-Settled Trusts

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The federal “Special Needs Trust Fairness Act,” enacted in December of 2016, changed the law to allow individuals with special needs to create their own special needs trust. Ohio law, in response, has changed to coincide with this recent change. Currently, a mentally or physically disabled person may create a self-settled trust to hold their own assets and avoid them being counted for Medicaid or other public assistance program eligibility. Usually the need arises to make this type of trust when a person with special needs receives a legal settlement or inheritance while already eligible and receiving government assistance.

In a nutshell, “self-settled” special needs trusts are simply trusts established by the disabled beneficiary with the beneficiary’s own money and assets.  The devil, however, is in the details. Self-settled special needs trusts are, by regulatory requirements, only available to those persons who are 1) disabled and 2) are under 65 years of age. Further, the trust must be appropriately drafted to include language that mandates that the cost of Medicaid services actually paid on the individual’s behalf will be paid back to Ohio at the individual’s death. Thus, in an indirect way, the Department of Medicaid and other government program will get their money and be reimbursed, at the point of death, but the individual reliant on government assistance can still maintain eligibility. Therefore, both parties win. Note, however, the use and drafting of self-settled special needs trusts is nuanced. For example, with these trusts once a beneficiary reaches 65, the trust can no longer be funded with new assets or money. Yes, what is already in the trust will remain protected, but flexibility and control is lesser than with other types of special needs trusts. As such, always consult an experienced Cleveland area estate planning attorney when deciding which type of special needs trusts is appropriate for you and your family.

A self-settled special needs trusts are often referred to as a “Medicaid payback trust.” Both names refer to the same type of trust, however, the later name focuses on the primary characteristic, and requirement, of a self-settled special needs trust, in that any Medicaid resources or services received by the beneficiary will be paid back from the assets housed within the trust. A partial corollary is a Miller trust. A Miller trust houses income for those receiving nursing home care that would otherwise put them over the income thresholds for the Medicaid income cap. The income is kept in trust and used to pay for care, but relevant here, names the State of Ohio as a beneficiary under the trust. Thus, the State of Ohio can recover the total amount of Medicaid payments made to an individual after death.

Self-settled special needs trusts are different from Miller trusts in that they allow for a much greater breath of resources allowed to be placed in trust and does not set the State of Ohio as a direct beneficiary under the trust. Naming a person or entity as a trust beneficiary grants them certain rights and privileges which, in certain circumstances, can lead to headaches and issues for the special needs person and their families.

Often self-settled special needs trusts are estate planning instruments of last resort. Usually within the context of an unexpected windfall going to a person with special needs. Going the self-settled route also places administrative labor and costs of the trust on the special needs person. Further the requirements of specific drafting to be legally operative under Ohio law is usually something laypersons are ill-equipped to do themselves. As such, always consult an experienced Cleveland area estate planning attorney when deciding which type of special needs trust is good for you and your family. The stakes are too high to do things ill-informed.

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Special Needs Trust #2 photo

The Three Flavors of Special Needs Trusts: #2 Pooled Trusts

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Baron Law LLC, Cleveland, Ohio, offers information for you to reflect upon while you are setting out looking for an estate planning attorney to help protect as much of your assets as you can. For more comprehensive information contact Baron Law Cleveland to draft your comprehensive estate plan to endeavor to keep more of your assets for your heirs and not hand them over to the government by way of taxes.

In order for those with special needs to qualify for government assistance programs such as Social Security Income and Medicaid, they must meet health, income, and asset thresholds. In other words, at least on paper, potential recipients must be quite poor to receive benefits. As such, just like to initially receive benefits, if special needs person is already receiving these benefits they must maintain the established thresholds of assets and income, or lack thereof. So, an inheritance, receiving an accident or medical malpractice settlement, or merely amassing too much money in an account can kick these people off of much needed benefits due to violating the standards set down by managing government entities and departments. In the hopes of preventing this outcome proactively, many people turn to special needs trusts.

Special Needs Trusts: Revisited

A special needs trust allows a disabled person to, theoretically, shelter an unlimited amount of assets for their needs without being disqualified from government benefits.  As hinted to above, this is because the assets held in a special needs trust properly drafted by experienced Cleveland attorneys are not counted as individual resources for purposes of qualifying for benefits.  On paper, at least in the eyes of the government and taxman, the beneficiaries of special needs trusts meet their asset and income thresholds. As a consequence, those special needs persons lucky enough to have a special needs trusts have access to more money, which can be spent on comforts, necessities, housing, and much needed medical care. Though we in this country are lucky to have government assistance programs available to us, anyone with a loved one solely dependent on them will tell you it’s certainly not enough. A properly drafted special needs trust will provide extra care and life satisfaction for disabled loved ones regardless of whether supporting family members are around for many years or pass away suddenly.

Pooled Special Needs Trusts

As mentioned in previous blogs, there are many “flavors” of special needs trusts. One such type is a “pooled” special needs trust. The focal point with this trust is maximizing potential gains from money funded into the trust, minimizing administrative costs, and delegating trust management to experienced personnel. In a nutshell, pooled trusts are a method to provide benefits of a special needs trusts without having to do the administrative legwork yourself.

As a rule, pooled trusts are required to be run by non-profit companies or organizations. The company or organization running the pooled trust drafts a master trust agreement that dictates the terms of the trust and the relationship between the trust and all participants.

In almost all cases, the pooled trust is run by a professional administrator. After establishment of the trust, money is transferred into the pooled trust to fund a particular individual’s stake in the trust. This single source of funding is then pooled with other people’s money to make one big pot, hence the name pooled trust. This pot is then controlled and invested, usually by an investment manager, similar to the way a hedge fund or other investment group operates.

The major takeaway is the “pooled” aspect of this particular trust. In theory, because there are many sources of funding brought together and utilized tactically, a pooled trust can make more stable investments and provide additional management services that other types of special needs trust cannot. Again, this increased investment power and potential returns coupled with lowered administrative costs, because it is borne by a large group instead of the individual and also an individual trustee does not need to be vetted and appointed, is also with the added benefit of the special needs beneficiary still being able to receive government benefits.

Unique Issues with Pooled Special Needs Trusts

The most obvious potential issue with pooled trusts is control, or lack thereof for individual participants. With a pooled trust, the trust assets are managed by people selected by the non-profit organization and not by anyone associated with an individual participant. This, in turn, means unassociated individuals and trust terms dictate how investments proceed and when disbursements occur, pretty much in a take it or leave it style. Once money is surrendered and placed into the pooled trust, individual participants how no say over how it is spent or when it will be distributed.  Additionally, it is a little known and little advertised fact that after the special needs beneficiary passes, some or all of their particular trust account will be kept to help with continued funding for the pooled trust. As always read the fine print and be completely sure you know what you’re signing up for.

With pooled trusts you make undertake a pro’s vs. con’s analysis, lack of control versus potential gains that might be indispensable in providing of critical healthcare costs for those with special needs. Consult an experienced Cleveland estate planning attorney who is familiar with drafting and administrating special needs trusts in order to find out potential options and they best course to take. Further, before signing on the dotted line to participate in any pooled trust, have an experienced Ohio estate planning attorney review the master trust agreement. Often these documents are very massive and have many hidden terms that can have profound impacts on your and your loved ones with special needs.

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Special Needs Trusts

The Three Flavors of Special Needs Trusts: #1 Third-Party Trusts

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Estate Planning law firm Baron Law Cleveland offers the following part 1 of a three part series of explaining the difference trusts available for those who have loved ones with Special Needs.  Dan Baron of Baron Law can advise what is best trust for your situation as the trusts are as individual as your loved one.

According to recent statistics for the National Organization on Disability, nearly 1/5 of all Americans, almost 54 million, have a physical, sensory, or intellectual disability. Every one of those 54 million have parents, siblings, family members, and loved ones who want to ensure they are comfortable and provided for. As with many things with special needs persons, the solution for providing for them isn’t straightforward or simple. This is where special needs trusts often play a pivotal role in providing support and estate planning peace of mind.

Special Needs Trusts: A Primer

Special Needs Trusts, as their name suggests, are trusts. As trusts, they hold the common characteristics and features shared by all trusts. A trust, to put it simply, is a private agreement that allows a third party, a trustee, to manage the assets that are placed inside the trust for the benefit of trust beneficiaries. There are innumerable types of trusts, each with own its respective legal conventions and purposes. A critical aspect of trusts is that the assets housed within them usually aren’t counted as a part of the trust creator’s taxable estate. Thus, when the owner of the trust creates the trust and properly funds it, the assets go from the owner’s taxable estate to the trust. Afterwards, when the owner dies, the assets are not in the owner’s estate and subject to probate.

The distinguishing aspect and purpose of special needs trusts, sometimes referred as supplemental needs trusts, is that resources placed within these trusts can be managed for the benefit of a person with special needs but still allow them to qualify for public benefits like supplemental security income and Medicaid. This allows grantors, those who create the trust, usually in this instance parents of someone with special needs, to provide much need stable and monetary support while still allowing often indispensable social assistance programs for their children, even long after the parents pass. Third-party trusts seek to supplement income from assistance programs not to replace it.

Third-Party Special Needs Trusts

In general, there are three types of special needs trusts: Third-party trusts, self-settled trusts, and pooled trusts. Of focus here is third-party special needs trusts. The name denotes the defining characteristic of this trust, that a third-party set up a trust and funded the trust. This is also its most critical aspect because the funds and/or assets in the trust never belonged to the beneficiary with special needs, the government is not entailed to reimbursement for Medicaid payments made to the beneficiary nor are these assets taken into account when calculatng either initial or continued eligibility for government assistance programs for the special needs person.

These trusts are usually set up as a part of a comprehensive estate plan that initially provides a place to house gifts given by family members during their life to someone with special needs and later to also house inheritance from these same family members when they pass. Third-party special needs trusts are often denoted as beneficiaries on life insurance polices or certain retirements accounts. Further, these trusts can also own real estate or investments in the name of the trust but for the ultimate benefit of the person with special needs.

Advantages of Third-Party Special Needs Trusts

A big advantage of third-party special needs trusts is that, while the grantor is living, funds in the trust usually generate income tax for the grantor, not for the special needs beneficiary. This shift in taxation is dependent on proper drafting which is why experienced counsel is always recommended with special needs trusts. This tax shift avoids the hassle and stress of having to file income tax returns for an otherwise non-taxable special needs beneficiary and also having to explain the income to the Social Security Administration or other interested government entity.

Additionally, because it a trust, ultimately what happens after the special needs beneficiary is controlled by the grantor, you. Thus, the grantor always retains control and upon the special needs beneficiary’s death, the assets in the trust pass according to the grantor’s express wishes, even longer after death, and usually to the grantor’s surviving family member or other charitable institutions. This means the special needs person is always provided for, and far-above those people solely dependent on government assistance, and the money, at the end, will continue to do good for either your family or the world at large.

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Special Needs Trusts

Unique Needs, Unique Solution: Supplemental Services Trusts

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As with most persons with special needs and disabilities, the name of the game is to pay it forward. Unplanned and unthought out self-sacrifice, however, are rarely the proper ways to go about anything. Unfortunately, those families with loved ones with particularly debilitating diseases or affiliations are often solely focused on the here and now in terms of providing care. When asked, was about in 10 years? Or what about when you pass or are too old or sick yourself to provide care, what then? Regularly, these questions, though critically important, are pushed aside because to answer them would require tough choices to be made. Often these families fall back on pithy and often callous responses.  Responses such as, “everything will be fine as long as my child dies before I do” or “my other, more typical children will shoulder the burden and take care of their special needs sibling.”

Special Needs Trusts in a Nutshell

Special Needs Trusts are private agreements that allows a third party, a trustee, usually the family, to manage the assets that are placed inside the trust for the benefit of trust beneficiaries, the special needs person. There are many types of trusts, each with own its unique legal conventions and uses. The critical aspect of trusts in this circumstance is that the assets housed within them usually aren’t counted as a part of the trust beneficiary’s taxable estate. Thus, the resources placed within these trusts can be managed for the benefit of a person with special needs but still allow them to qualify for public benefits like supplemental security income, Medicaid, and other local and state government benefits. This allows grantors, those who create the trust, to provide much need stable and monetary support while still allowing often indispensable social assistance programs for their children, even long after the parents pass. Critically, these trusts seek to supplement income from assistance programs not to replace it, which is important in the eyes of the government because if a family, and by extension a special needs person, can provide for themselves than they don’t need assistance programs.  This theory is echoed in the needs and health-based requirements of many, if not all, assistance programs. The rules and requirements for local, state, and federal government assistance programs can be confusing, contract a local Cleveland area estate planning attorney today to make sure you’re informed enough to make the right choices.

Supplemental Services Trusts

Per O.R.C. § 5122-22-01(D), trusts for supplemental services, denotes the primary requirements of these trusts which allow special needs persons to benefit from them while also receiving government benefits:

“(D) Supplemental services. (1) Supplemental services are expenditures, items or services which meet the following criteria:

(a) The services are in addition to services an individual with a disability is eligible to receive under programs authorized by federal or state law or regulations, and the services do not supplant services which would otherwise be available without the existence of the trust;

(b) The services are in addition to basic necessities for such items as essential food, clothing, shelter, education and medical care, and the services are in addition to other items provided pursuant to an ascertainable standard; and

(c) The services are paid for with funds distributed pursuant to a trust which meets the requirements of section 5815.28 of the Revised Code or with funds distributed from the supplemental services fund created in section 5119.51 of the Revised Code, and the services would not be available without payment from the trust or fund.

The two main takeaways from this passage is that 1) the trust services do not replace government benefits and 2) a supplemental services trusts is the only way a special needs person would get these additional benefits.

In nutshell, a supplemental services trust is for individuals who are eligible to be served by the Ohio Department of Mental Retardation, a county board of mental retardation and developmental disabilities, the Ohio Department of Health, or a board of alcohol, drug addiction, and mental health services. With this trust, trust beneficiaries must be vetted and approved by the State Department of Disabilities or the County Board of Developmental Disabilities. The trust estate, i.e. stuff placed in trust, as of 2015, cannot exceed $242,00o.  Further, Ohio law is strict that the trust assets are used only for supplemental services, those services not provided by government assistance programs. Additionally, another hardpoint with these trusts is that upon the death of the beneficiary, a portion of the remaining assets, which must be at least 50 percent of the remaining balance, must be returned to the state of Ohio to be used for the benefits of others who do not have such a trust. Thus, pay it forward, at least in this circumstance, is written in the rock of Ohio law.

So why use a Supplemental Services Trust?

Again, the best way to demonstrate the value of these trusts is to go into the Ohio code. Per Per O.R.C. § 5122-22-01 (D)(2):

Supplemental services…include, but are not limited to, the following:

(a) Reimbursement for attendance at or participation in recreational or cultural events;

(b) Travel and vacations;

(c) Participation in hobbies, sports or other activities;

(d) Items beyond necessary food and clothing (e.g., funds for dining out occasionally, for special foods periodically delivered, or for an article of clothing such as a coat which is extra but which is desirable because it is newer, more stylish, etc.);

(e) Cosmetic, extraordinary, experimental or elective medical or dental care, if not available through other third party sources;

(f) Visiting friends, companionship;

(g) Exercise equipment, or special medical equipment if not available through other third party sources;

(h) The cost differential between a shared room and a private room;

(i) Equipment such as telephones, cable television, televisions, radios and other sound equipment, and cameras for private use by the individual;

(j) Membership in clubs such as book clubs, health clubs, record clubs;

(k) Subscriptions to magazines and newspapers;

(l) Small, irregular amounts of personal spending money, including reasonable funds for the occasional purchase of gifts for family and friends, or for donations to charities or churches;

(m) Advocacy;

(n) Services of a representative payee or conservator if not available through other third party sources;

(o) Guardianship or other protective service listed in paragraph (C)(9) of this rule;

(p) Someone other than mental health community support staff members to visit the individual periodically and monitor the services he receives;

(q) Intervention or respite when the person is in crisis if not available through other third party sources;

(r) Vocational rehabilitation or habilitation, if not available through other third party sources;

(s) Reimbursement for attendance at or participation in meetings, conferences, seminars or training sessions;

(t) Reimbursement for the time and expense for a companion or attendant necessary to enable the individual to access or receive supplemental services including, but not limited to, travel and vacations and attendance at meetings, conferences, seminars, or training sessions;

(u) Items which medicaid and other governmental programs do not cover or have denied payment or reimbursement for, even if those items include basic necessities such as physical or mental health care or enhanced versions of basic care or equipment (e.g., wheelchair, communication devices), and items which are not included for payment by the per diem of the facility in which the beneficiary lives; and

(v) Other expenditures used to provide dignity, purpose, optimism and joy to the beneficiary of a supplemental services trust.

From the extensive list of available uses for trust assets for special needs persons, it is no surprise that those persons with those trusts live and much more comfortable and fulfilling life than those without. Additionally, these trusts shoulder the burden for parents and sibling for providing much need support and care while also acting as a tool for benefit preservation. There are many options available for those family members with special needs persons, talk to an experienced Ohio area estate planning attorney to find out the best options for your family.

Helping You and Your Loved Ones Plan for the Future